Hardly. I have been aware of how the condition turns out almost from the beginning. You see, one of the hallmarks of it is extreme abdominal pain, which easily eclipsed my broken bones or other items like having a gallbladder infection due to stones. I am told childbirth and having an appendix rupture also aren't as high up on the scale, although neither have happened to me. After a few of those episodes sans painkillers (and of course feeling like death would be preferable to continuation of that state) I went hunting for information since doctors are typically uninterested in pursuing the concerns of teens. Once I matched everything up, the medical literature was not shy about what the endgame looks like; after confirmation with some unlikely tests, I was largely on my own to deal with this, which meant more literature dives and even more unattractive stories.

So when he relayed this story, my internal reaction was more of a nod, "yes, that's how it tended to go back then," a bit like hearing old stories of the agonizing, inevitable deaths of those who contracted rabies, because by then it was just another data point in a straight line. That's not immoral at all.

Immoral, to me, is hiding this sort of thing from the people to whom it will happen, because if you do not know, you cannot plan around it. Being uninformed removes agency, and that's what we're discussing here -- do we allow other humans legal agency over their deaths, since they haven't any over their births?