Google/Fitbit will monetise health data and harm consumers [pdf]
cepr.org
cepr.org
Health insurers in my country(India) are already discriminatory, top health insurers here denied me health insurance because I disclosed my disabilities[1] despite Govt. guidelines against blanket denial of policies for the disabled. This is pretty much the case for anyone who discloses their disability truthfully here[2][3].
This is because they're not keeping in sync with the progress in medical science, why should my orthopedic troubles be a risk factor for providing insurance to cover COVID-19 treatment?
Now with say health data from devices, they'll likely find more statistical data to deny coverage (with some obscure reason) or increase premium to many even if the applicant isn't sick and thereby denying a chance of health insurance coverage if they really get sick. Especially when an unqualified underwriter decides whether I should get a health insurance or not.
[1]https://abishekmuthian.com/insurers-are-putting-the-lives-of...
[2]https://www.indiaspend.com/covid-19-insurers-are-denying-pol...
Also, I think Fitbit already makes money this way
If you don't purchase insurance by clicking on ads, then you're fine?
not if insurers make the default more expensive, then make advertisments for a "secret" cheaper plan targeted at fit people.
But I don't know anyone who is going to buy insurance from an ad. Almost everyone is getting insurance from work.
Where your Fitbit data ends up and how it will be used is just as much of a question with Google as with any other random acquirer.
How can you have this opinion when they are already being sued by the government for doing this exact thing (in another area of their business)?
The lawsuit I had in mind was the one calling out their shady AMP practices.
That's not ideal, but it's also far from the worst case scenario.
The key term to note from my statements are -
> Already discriminatory
•I wouldn't be surprised if the health insurers are already getting email ids of those who land in medical sites by searching for an ailment, Aren't email ids are even visible to the website if they had just implemented 'Sign in' and the user had already signed in the browser?
•I have reasons to believe that they are collecting patient data from the hospitals directly from my lengthy conversations with the people from insurance company. There is no HIPAA here.
Any additional data from health-tech, even if indirectly to just target advertisements could be used as an ammunition for further discrimination by parallel construction bypassing anti-discriminatory guidelines/laws from the Govt.(like they're already doing).
Of course insurers can collect health-tech data without direct access to the device through their own app, Say 'We need permission to access health data from X app for 5% discount in premium' would not invoke resistance from those who don't know that they are falling into a greater pit.
Honestly at this point I would have no more health cover whatsoever, as I am a big consumer of random bits of medical knowledge.
Under US law at least, your health data isn't inaccessible to companies. It just requires your consent for release. That consent is basically baked into the process under a checkbox for the terms of whatever you're trying to buy.
That said, this kind of data is probably uninteresting. Diagnoses & prescription drug fills are probably more indicative (and folks like https://www.rxhistories.com/ helpfully aggregate and standardize the data).
But really, neither Google nor Fitbit are the biggest worry, the mere existence of such health tracking devices already is the problem. Health Insurers and even life Insurers will ask you to submit your data "voluntarily". Right now, there are plenty of insurers already who offer rebates on premiums if you wear a health tracker and submit data showing you meet some goals[1].
My guess is that in the future policies in many jurisdictions will become prohibitively expensive without the "rebate" you get for wearing health tracking devices, if this goes unregulated (or any such regulations are not enforced). Insurers might force you into "voluntarily" sharing your data this way, and may even force you into "voluntarily" sharing historical data when you apply for a policy.
My German insurer offers to pitch in I think 90 EUR to buy a fitness/health tracking device. They cannot ask me or anybody for the data (yet) in return for rebates or amenities, due to regulation, which is good. However, I already dread the day when our politicians decide that to "help people stay fit" and "encourage people to stay healthy" and "help reduce insurance costs for regular(!) people(!)" the regulations need to change to allow such schemes.
[1] e.g. https://www.washingtonpost.com/business/2018/09/25/an-insura...
The prospect of seeing people jogging with a dozen fitbits upon each arm is something I will not be supprised too see now.
After all - people pay other people to walk their dog, not a huge leap to pay other people to take their activity monitor for a jog.
This unbelievable con-trick story came out last year, and seems to have had real life effect that insurers have started denying insurance to the vulnerable.
[1] - https://www.hindustantimes.com/india-news/haryana-scam-cashe...
Consumers cannot exit the market for health services. So we will never get the benefits of a free-market economy.
A "free" market where consumers cannot exit will always trend towards becoming the most expensive the economy can bear.
I think the main reason this doesn't trend all the way towards this theoretical extreme is that people don't really get into healthcare just to make money.
It’s an option to the health insurance contract, so in a way they already have much more data than whatever would be provided (since they process far more sensitive medical data for reimbursement), but as I said it’s also structurally a subsidiary.
Here where I live there is an insurance company offering you points to walk miles and/or go to the gym, and then exchange your points for presents. To keep you healthy and thus profitable to them.
I feel like I can safely assume things like "a for-profit corporation will monetize resources available to it" without any specific evidence about the particular corporation or asset.
Example: https://support.google.com/adspolicy/answer/143465
"Advertisers can’t use personal hardship categories to target ads to users or to promote advertisers’ products or services. See below for specific examples of what we don't allow."
"Examples: Treatments for chronic health conditions like diabetes or arthritis, treatments for sexually transmitted diseases, counseling services for mental health issues like depression or anxiety, medical devices for sleep apnea like CPAP machines, over-the-counter medications for yeast infections, information about how to support your autistic child"
It is not "extraordinary claims require other similar extraordinary things to have happened in the past". That is not evidence for your claim.
The point is that "corporations will monetize data" isn't an extraordinary claim.
This company will monetize this data is also an ordinary claim (from history), but similarly needs evidence. "Companies have monetized similar in the past" is not evidence they'll do it in this case.
If you're a gambler, you should absolutely use that fact to inform your betting, but it's not evidence.
Like if you claimed "pine sap is sticky" I don't feel compelled to challenge you and demand to touch it myself before I believe you. I've encountered plenty of pine sap in my life, and it was all sticky. I _have_ evidence that pine sap is sticky generally, so I don't demand _extra_ evidence that a _specific_ portion of sap is sticky.
Complex things are, well, complex, and absolutely not all the same.
The extraordinary thing here is if they bought the data to /not/ monetize it. That requires the evidence. Not the overwhelmingly expected thing. They are mutually exclusive alternatives after all. Go with the overwhelmingly likely one until you've got a solid reason not to. We don't here.
I don't know for sure if this is their business model. I think it is, and it makes sense as a strategy.
That's the point, and you also don't know for sure what Google's business model with the health data will be either.
The GP post I was replying said that it was obvious Google was monetizing the data, and implying that it was therefore bad. My point is that if monetizing health data is inherently bad, then so is what Apple is doing.
Because monetize is a meaningless word here. Unless Google suddenly decides to go against their fiduciary responsibility and purposefully lose money, any use of the data is going to be somehow monetizing it.
They could of course change that, or sneakily exfil it. The first hasn't happened yet, and the second would destroy a vast amount of consumer trust well before all the lawsuits started.
So I do rather doubt it.
Apple Health data is stored in the cloud, why would you think otherwise? They don't store all of it but they do store some.
> They could of course change that, or sneakily exfil it. The first hasn't happened yet
It already happened, Apple Health data was always stored in the cloud.
https://support.apple.com/en-us/HT209519
> If you're using iOS 12 or later and have turned on two-factor authentication for your Apple ID, health records are encrypted using end-to-end encryption through iCloud. This means only you can access this information, and only on devices where you’re signed in to iCloud. No one else, not even Apple, can access end-to-end encrypted information.
Because it wasn't the case in the past and I don't use Apple Health or backup to other people's machines, so I don't care enough to stay up to date on the particulars.
Prior to IOS 9 it did not store health data in the "cloud", except as an encrypted blob in a backup.
https://www.macobserver.com/tips/quick-tip/quick-tip-icloud-...
The title you are commenting about is written by the CEPR, an institution independent of the EU, which supports that opinion with their own arguments. This should not be confused with the Commission's investigation.
[0]: https://ec.europa.eu/commission/presscorner/detail/en/ip_20_...
Sidebar: I love that this expression has entered the majority vernacular, thanks mostly to Among Us. I don't think we had such a terse form of this expression before.
They aren't showing any harm to consumers at present, just that sometime in the future, maybe, things could be harmful.
It hasn't happened yet, but you know how it's gonna go.
I'm serious though, what's the most nefarious thing you could do with that? My imagination is unimaginative.
It’s more about excluding people from advertising as opposed to including. If you think of it from that angle it won’t take too much imagination to see the issues that may arise.
Some of them also track activity type data, so whether you're claiming to exercise at certain times of the day, along with how long and what kind.
That would be very interesting to insurance companies.
They do.
https://www.forbes.com/sites/andrewwilliams/2020/09/09/fitbi...
Very shady move on behalf of Google. Seems like the acquisition of Fitbit was done with this intention. Idle dollars, ripe for picking.
Also, the heart rate monitor from MyZone (https://www.myzone.org/) because it connects to my Assault Fitness AirRunner and I get to see my real time heart rate data on the control unit.
I bought a Garmin Instinct based on favorable mentions here a couple of weeks ago and I'm pretty happy with it. Garmin seems to be realistic about not competing with Apple directly.
I'm not excited about Garmin having any more info than they have to after they were hacked. https://www.theverge.com/2020/8/4/21353842/garmin-ransomware...
I was already pissed that Fitbit bought Pebble, crippled the Pebbles -
(yes, I know, there's an unofficial app store, some day I might even get around to looking into it)
- and pushed a "fitness" data-gathering update that I didn't ask nor cared for -
and now you're saying that this data is even going to be sent to Google?!
(Sigh, this is WhatsApp contacts => Facebook all over again...)
* Longer Battery Life
* Sleep Tracking
* Smaller device on wrist with the Charge 4 vs Apple Watch.
Can people suggest alternatives to Fitbit? My favorite feature is the sleep tracking (but who knows how accurate it is). Does Garmin or Apple have comparable features to Fitbit, especially with sleep and battery life?
I would like to warn you that you shouldn't trust the waterproofing although, because they use glue to seal the watch screen against the gasket, and temperature variations can eventually loosen that glue, as I found out to a broken series 3 watch one day after swimming in a heated swimming pool and then going skiing the next day.
Apple health is one of the few things they actually end to end encrypt[0], so there is no data to sell currently.
[0] They should E2EE everything on icloud, including imessage backups, which they don't, but I suspect there is some covert US govt pressure stopping them from doing so. https://bgr.com/2020/01/21/iphone-icloud-backup-isnt-fully-e...
Almost all notifications are disabled. The screen turns off when I'm not looking at it, and so on.
I get around 2 days out of it - easily a day and a half, but that allows me to charge it when I feel like it, usually when I'm taking a shower.
I own a 6. I've got most of the health tracking stuff turned on, since that's what I bought it for.
Isn't this article just speculation vs actual announcements from companies?
It's better than Fitbit in every category, and significantly cheaper. There's plenty of 3rd party app support and it's easy to extract data into a privacy conscious health app, if you don't trust any of the apps too.
If you have data they can make better (creepier) use of, they'll pay a premium.
[1] Blog: https://blog.freeyourgadget.org/ Homepage: http://gadgetbridge.org / Codeberg repo: https://codeberg.org/Freeyourgadget/Gadgetbridge
Should Google and others be regulated, oh yeah.
Now you can but sensors and smart phone connectable heart rate and bp monitors that are medically useful, but they're not going to fit on your wrist.
-ch4s3 in 1950
I was responding to:
> Maybe, but since we don't have currently good way to use our health data for health purposes
My criticism is that the is NO WAY you could use this data, because the data is junk. I even pointed out that there are larger devices that do work. But there are real physical limitations in trying to measure heart rate through the wrist by bouncing light off of the veins. Measuring blood flow through tissue downstream from the heart is an indirect measurement at best. Skin, sweat, tissue composition, and motion all add confounding variable that are hard to correct for in software.
The data you do get from the device is do you regularly exercise while wearing the device or not.
You're just wrong about no ways to use this data. I've personally dramatically improved my health via wearables over the past 7 years. A close friend with a heart condition has perhaps had his life saved by these things. Check out the FitBit forums or subreddits. When you have a lot of data with high dimensionality and apply modern ML/DL methods you can discover connections that just aren't visible with fewer dimensions.
Healthcare is going to have its "What Just Happened?" moment sometime in the late 2020's.(https://moalquraishi.wordpress.com/2018/12/09/alphafold-casp...)
You could maybe do something with ML/DL on resting heart rate measurements for some kinds of people (thin but not too thin, and with lighter skin).
I'm totally willing to believe that cool things are happening in med-tech, but I don't believe optical blood flow sensors mounted in a watch band are one of those things. If someone produces some real research where they get meaningful diagnostic info out of these devices, then I'm open to changing my mind.
In my case, I found sometimes I'd start feeling really odd when I hadn't eaten much lately, and I discovered due to my Fitbit that my heart rate was spiking even while I was pretty much sedentary during those times. When my best description of the event prior was "feeling weird", having that info from my Fitbit is pretty nice if I want to explain to a doctor what's going on.
Is the sensor extremely precise on those figures? No. Is the general trend of being hooked up to them both during baseline living and during an unexpected medical event pretty useful? Absolutely.
Chest strap heart rate monitors that cyclists use produce useful data, but obviously you aren't going to strap one on every day.
If my Fitbit says I'm usually here and then all of a sudden, I am here, the sensor may not be super precise, but it's absolutely evidence that the measured value has changed.
"Scientists were already aware that low blood sugar might speed up heart rate by sympathoadrenal stimulation. In other words, low blood sugar may spark an epinephrine or adrenaline response in the body as part of our biological emergency alert system, that which induces “fight or flight” or in the case of diabetes, a strong urge to signal the body to “consume sugar now!” Coupled with low blood potassium, this response may lead to an irregular heart rate."
"Blood sugar levels affect the heart when the levels are at extremes, either very high or very low. A higher level of blood sugar raises the blood pressure and heart rate. This leads to heart diseases. If you have low blood sugar levels you will experience a rapid heart rate and a drowsy, irritable weak feeling."
That latter description far better explains how I was feeling. Anyways, I neither understood why I was feeling that way, nor it having any relation to my heart rate. Having my Fitbit on both gave me information that could help me identify what was going on, but also a way to know if it's happening again, so I can eat something quickly.
They are not meant to.
> people don't necessarily wear them consistently
What are you basing this on ? Anecdotally, I and a few of my friends who are fully into Fitbit are wearing them dutifully. I was also somewhat skeptical but I figured it's not that much money to try. It completely changed my view on Fibit after trying it, and I've been very consistently wearing it.
> However, you could probably determine that yourself.
Not really. There's nothing like honest data and clear metrics to show how behind someone is. It also very successfully turned "fitness" into a game for me - clear, achievable goals and a way of tracking it easily did wonders to keep me motivated.
> The heart rate monitoring is good enough for monitoring the intensity of your own exercise but not good enough for anything diagnostic.
It's not meant to be a short-term diagnostics tool, and if you expect that, I think your expectation is completely misplaced. But it very clearly would be a useful data for the long-term baseline.
They say an ounce of prevention is worth a pound of cure - Fitbit is doing enough "nudge" to improve that prevention department for me, for a dirt cheap price. It's been an extremely useful and valuable tool and a service for me. I've never consistently tracked my weight, nor exercised consistently - and I have no doubt majority of people fall into a similar bucket. Not everyone would benefit as much, but clearly there's sizable population that would, and Fitbit, for that price, is doing a lot more to keep me motivated and exercise than gym memberships or private trainer or group exercise classes or most such things I've tried in the past. I actually wish Fitbit would allow us to share the exercise records with my primary care doctor - that would keep me even more honest, and would provide better insights and long-term trend data for my doctor.
I know, that's my whole point. They aren't medical devices and aren't useful for medicine/healthcare beyond showing that you are or are not active.
> What are you basing this on ? Anecdotally, I and a few of my friends who are fully into Fitbit are wearing them dutifully
Optical blood flow sensors need to be held flat against your skin with minimal movement up and down the arm. That's just hard to do.
> It's not meant to be a short-term diagnostics tool
Again, that's exactly what I was saying. My only claim was that the "health" data they produce isn't useful for healthcare in a clinical setting. This is the reason health record systems don't import that data. I worked in the medical record space for quite a bit of time, and never met a doctor that wanted this kind of data in a medical record.
> since we don't have currently good way to use our health data for health purposes
It's difficult to share Fitbit data with my primary care doctor. I think this statement describes that situation well (and beyond). And Fitbit data is clearly health data. And nobody has claimed it's for "healthcare in a clinical setting". I think you're beating a straw man you've constructed.