[edit: what is in your control is quality of life. Yours. Those you love.]

Plan for long term care. Have a living will. Figure out who you want to have power of attorney. Figure out who you want to have access to medical records behind Hipaa. Choose a lawyer. Do all that stuff now while it's less messy and there is a low probability of crisis. These are things that are good to do even without diagnosis of a debilitating illness. They are good things to do orthogonally to software engineering.

In the US, there is the Alzheimer's Association. https://www.alz.org/ similar groups are likely in other places. There are resources. But they are stretched thin because Alzheimer's lasts a long time without underlying morbidity. Again, acting early matters because waiting lists are long.

Consider moving into an assisted living facility:

  with step up to nursing home with a memory care unit

That's not all of them. There is a high demand. There are waiting lists. There is screening against people with a history of violence. Violence often accompanies Alzheimer's. Not always. But often. Start managing your disease as a disease don't use software engineer as an excuse. The search is going to take time and effort. Right now, you get a full say. You get a chance to see what is available and what it costs.

Well fuck, this all sucks. I'm sad to learn of your diagnosis. Saying "we all die" probably doesn't help. What's in your control is some of the circumstances in which your disease progresses. There's no manual. No instruction book. And it's all going to involve institutions where your unique circumstances are mostly irrelevant beyond your illness. Institutions that deal with the normal problems. Institutions that can't act quickly when someone calls for resources in crisis. Plan and act now for the people you love.