Also, I recently donated to a family member, even though the treatment she is receiving is in my opinion snake oil. There is 0 peer reviewed studies. I still have mixed feelings about it. I researched what other people experienced with the treatment and results were mostly negative. They sell hope.
I too have a chronic condition, and there are doctors who offer magic solutions for large sums of money. There is a doctor who claims he had the condition and treated himself. Then weeks later his website went up and he now offers the treatment for a tiny sum of like $13k. Desperate people will pay that money for having hope. It is sad imo.
In general regular doctors will be blunt and honest. Doctor needs to tell you that if there is no hope there is no hope and how much time you have or what you can expect. In the practices that operate in grey areas and provide treatments which are not backed up by science people are getting scammed. I have been to one of those places with a family member...everywhere you look they have quotes about hope and not giving up but then when it comes time to leave you are responsible for $3000 for a visit, of course no insurance will cover it. Makes me disgusted, as that money would be better spent trying to adapt to your new condition if possible.
I too had a hard time coping with my condition and honestly the US social safety net is pure garbage. Disability takes two fucking years to get a decision, and you will most likely need a lawyer. You could not even get healthcare before obamacare or pre-existing condition would not be covered. I lost a job and had to pay $600 for cobra insurance. Honestly, just thinking what I had to go through makes me want to go back to Europe.
Edit: Apologies that this turned into a rant.