I have a genetic/hereditary disability which has progressively deteriorated over my working career. I took the decision 10 years ago to quit my senior role at a FTSE100 and do a startup instead so that I had full control over my work load and work environment.

Fast forward to today, and I'm now only able to work for a few hours a week. The business I founded is mature, and largely manages without my input.

It's hugely frustrating not being able to do more. Given the limits I have on my output, and that I have no sensible idea of what the future holds, I almost exclusively do stuff that (a) really interests me and (b) is rewarding for me personally.

Inevitably a chronically ill person is likely to be/become depressed: I found anti-depressants really useful. I had no idea I was so depressed.

I've tried counseling, it's just not for me.

I'm actively engaged with the experts in my condition, and have gained an expert knowledge. No one else will do this for you. Neither will anyone else will take a holistic view in terms of your care.

I have a fantastically supportive SO and rarely stop to consider myself as disabled -- this is a doubled edged sword as it leads to boom and bust.

HTH in some way. (Edit - formatting, clarity re startup)