A 4 year old boy trapped in a teenager’s body
thecut.com
thecut.com
Having said that, it is not the decision I would make. I would, with 100% certainty, biopsy the embryo and eliminate those with the disease, whether I had experienced it myself or not. And I wouldn't think twice.
It isn’t “just” because this particular case is super rare and scary that I would choose to eliminate those embroyos, it’s that I would have the option to prevent it.
Would I do the same for embryos with diabetes, poor eyesight or cosmetic defects? Probably not, those are pretty manageable.
I have no interest in having a child that requires extensive medical care and would prevent that if I had the option.
I like the take on the disease beeing some kind of family legacy even with all it encompass.
I couldn't imagine what the author went through, puberty at 4 years old.
A small step for testosterone (god bless it), a big step for mars colonization.
(On the other hand, astronauts fighting all the time inside a complex life supporting system would be not probably the best idea)