This happened to me. Saw a Facebook post forma friend and then realized I had it, and all the implications and some difficulties in my academic and professional life.
I told my friends, some of whom went "ah-ha!". Oddly, someone who ran a lot of our WoW raids basically put 2+2 together and recognized why I had an almost impossible time on some bosses.
I also found out my mother has it - and she didnt know it was a thing either.
I had ALWAYS thought people were just bs'ing when someone would say stuff like "visualize this or that".
It's a shame that it feels like it hampers (or partly hampers) a lot of fields I am very interested in.
I have 0 visual ability when awake, but fully vivid dreams and vivid lucid dreaming... so theres just something that turns that off completely while fully awake.