How can you treat someone who doesn’t accept they are ill?
mosaicscience.com
mosaicscience.com
> One is never ill in general. One is always ill with relation to some bounded activity. It is not cancer that makes me ill. It is because I cannot work, or run, or swallow that I am ill with cancer. The loss of function, the obstruction of an activity, cannot in itself destroy my health. I am too heavy to fly by flapping my arms, but I do not for that reason complain of being sick with weight. However, if I desired to be a fashion model, a dancer, or a jockey, I would consider excessive weight to be a kind of disease and would be likely to consult a doctor, a nutritionist, or another specialist to be cured of it.
Finite and infinite games - page 56
>The loss of function, the obstruction of an activity, cannot in itself destroy my health. I am too heavy to fly by flapping my arms, but I do not for that reason complain of being sick with weight.
It wouldn't be a loss unless he had previously been able to fly, otherwise it's a maintenance of the status-quo.
If I inherited some form of respiratory condition at birth which persists as an illness, living with it is maintaining the status-quo; yet it is very much an illness. There is no loss of function per se, it was simply never there.
In Germany even suggesting a law like this will provoke immediate protest by some people who claim to fight for civil rights. What I've encountered though is, that those people who claim to speak for the affected ones don't have a friend or relative with this condition and have never even met such a person.
Fighting against AOT is for me not a defense of free will, but an act of denying people having a free will in the first place.
Sure, there should be certain checkboxes to be ticked off first. But e.g. if the whole family and friends speak out in favor of forced treatment in front of a judge, it should be regarded as one such checkbox.
In a country like Germany, with generous social services that even provides housing if your landlord evicts you, the vast majority of non-immigrant homeless are homeless because of schizophrenia. The friends and relatives I know affected by it, are only not homeless because we had to pull every legal string possible, so that social services don't treat them like the rest of their customers.
Ok, does meeting here qualifys as meeting? I am very against AOT and I did experience the problem first hand. A case which ended tragically not because the lack of, but because of a attempted AOT. As they can also worsen things. Especially if the patient is very sensitive to force.
We already have constructs in society for people that do not have the ability to care for themselves (temporarily or permanently). I would not be in favor of any law that tries to deliver care through the judicial system. Instead, I would much rather support a law that allows people close to the patient (like the mother in this story) to be officially designated as health proxy, so they can force treatment if the patient is unwilling/unable.
Only in cases where no such guardian is available (or is willing -- it is not an easy burden I presume) would I want the state to get involved, and even then much rather a health official than a judge.
Even if a relative is designated as a guardian, if the person refuses treatment what happens?
Forcing an unwilling adult to regularly take medication is not a simple thing to do and in many cases will require physical restraint or violence (or the threats thereof).
Even getting a young child to take medication can be challenging (try getting a 5 year old to go through a 2 week antibiotic treatment w a liquid antibiotic that tastes bad...).
If you're going to disagree with these arguments please realize that they are not my own. While I agree with much of what's in The Myth of Mental Illness, I don't agree with all of it. The above is obviously a very brief summary and leaves a lot unaddressed.
[0]: https://en.wikipedia.org/wiki/The_Myth_of_Mental_Illness
Further, as a researcher of mental health, I found the stigma associated with mental health treatment leads to a loss of seeking treatment, which may contribute to suicide or highly reduced quality of life in those whom treatment may benefit. Such books as this one do far more damage than good by perpetuating this harmful stigma.
Have you read the book? He doesn't argue that people should not seek treatment. He argues that many mental illnesses don't originate in physiological problems but are instead problems with people reconciling conflicting desires (I'm simplifying a lot here). He argues against compulsory treatment, not voluntary treatment.
The author was a psychiatrist and psychoanalyst. He is definitely not advocating for people to avoid treatment. He is suggesting that the focus on physiological causes of mental health problems obscures the causes of many such problems and prevents people from resolving them appropriately.
My understanding is the latter half of what you described is one of the main criteria for a mental illness. Not that some part of the body isn't functioning properly, but "Is this causing problems between him and the rest of society?"
(Not saying I agree with the criterion)
This has implications when you have a society of people with a lot of minorities from very different cultures.
I am one of those who will never work for the gov, regardless of the amount of money or consequences, or for companies like google and facebook.
It has caused problem in a previous job, where I just refused to work on something.
Do you think a belief shared by a tiny minority of the population, and that costs you a job, is a mental illness?
Is it a mental illness to fear big brother? Maybe. I could also say I have my preferences.
No, and I don't think any mental health professional would. This isn't exactly causing problems for either you or society. It caused a problem in your previous job, but it wouldn't cause a problem for most jobs you could do.
I think preferences is an interesting way to describe this, as it assumes a choice, which I don't think is true. But I do believe that the DSM-[x] is a description of deviations from social norms, and psychology/psychiatry is a way to help people adhere and integrate into society through therapy and drugs as their deviation makes it problematic to exist in society.
At least in terms of depression feeling numb and losing interest can feel involuntary; a feeling like nothing can penetrate this deep fog that you've nestle into. You sort of know you don't want to feel this way but the tricky bit is teasing away if it's "health" or "circumstance". But I think for the author this would fall under "actually unhealthy".
Contrast this with something like narcissism, psychopathy, or school shooters where the author might say: You just think they're ill because you think they're assholes, inconsiderate, or evil. They're not ill, they just don't play by your rules.
Disclaimer: Unfamiliar with the book. The preceding is speculation of the point of view as explained by the parent, but a view that I sorta resonate with.
With every school shooting or public massacre there are these long diatribes about it being a public mental health issue (or a gun issue?). Why can't they just be evil assholes who didn't have much to lose? or chose to act out in a vague revenge against society? I'm not saying I disagree but I suppose I'm skeptical it being painted as so cut and dry.
> "Being psychotic is not an exercise of free will. It is the inability to exercise free will.”
I get why people are nervous about state power. But there are a variety of conditions, including slavery, addiction, and psychosis, where people may voluntarily enter them but then cannot leave without help. It's a dilemma with no simple answers. But if we're serious about freedom, I think it's incumbent on us to grapple with the complex, inevitably messy issues involved.
In the case of slavery, the slave doesn't want to do something, but is forced to. In the case of addiction and psychosis, you don't want someone to do something, but he's allowed to.
And for the people trapped in things that are like slavery but have a gloss of voluntary acceptance, I'm sure that even more of those people would say they don't want outside help. Learned helplessness is a real phenomenon.
If you're saying these issues are complex, sure, all of them are complex. But I don't think economics and primate power dynamics are any less complex than addiction and mental illness.
[1] https://www.theguardian.com/world/2012/jun/16/slavery-starva...
Someone who wants to do anything someone else tells him to is free to do so, even if he isn't enslaved. So freeing a slave is not equivalent to "treating" an addict, because in that case the addict is not left free to do what he wants, to "submit" voluntarily to his desire for heroin.
I agree they aren't identical, but they all share an important commonality.
If sickness is defined as a function of your own perception of how it limits you (analogous to "freedom"), that's fine for all illnesses that don't affect your perception.
But in some cases like psychosis and schizophrenia, the illness directly affects your perception... your definiton of freedom; your definition of illness; it doesn't work anymore.
As an analogy: most children don't like to go to school, and have no intuitive feeling of why it is useful, but of course they should have proper education.
I think relatives should access the right for a psychotic person and act as a guardian.
Another interesting thing- at what point is it more merciful to leave somebody in psychosis? This is the coma patient, waking up, only to find his life been gone, his youth being spend, his family to be gone.
Is it not more merciful to leave somebody in the delusion until his/her final moments?
Now why am I so sceptical?
Well, first of all, declaring people mentally ill, was and is a common way to get rid of dissidents, or to get the money of a rich relative who don't want to die soon, or even consideres giving the money to a charity or alime Sources to the last one I don't have at hand, but putting people away who were annoying, was not only done in soviet russia, but even happened (or happens?) in germany.
(https://de.wikipedia.org/wiki/Steuerfahnder-Affäre or https://de.m.wikipedia.org/wiki/Gustl_Mollath German
basically, tax investigators went after some too powerful - which backfired. So even pro-government people got declared mentally ill and were locked away)
Then secondly, the human brain is not really understood. I have high respect for psychoanalysis and neurobiology, though, but I am highly sceptical, that they really understand, what they are doing. As far as I know, also the term schizophrenia is highly disputed. And I also know, that the common psychatrist is just bad. At least the quite some cases I knew about. (I know people working in that area). Standard procedure is calming them down with pills ... and keeping it that way. No thank you.
If I would see myself getting ill (it does not happen overnight), I would go seek a good doctor by myself. But if I choose to do what I do, it is my decision. Even if I would endanger my body - my body, my life.
Only if I would be a danger to other people ... well then society does, what it ordinary does with dangerous people, locking them away, until they are not a threat anymore.
There are lot of people out there, who damage the people they deal with psycologically.
That totally blures the line. Yes, there are tons of people out there who attack me psycologically with their stupidy, attempted dominace, insults, etc. But I don't think a law against stupidity would help.
Sounds a bit sarcarstic? Maybe, but listening to people sometimes (on TV for example) literally causes me pain.
But more specifically on topic, yes, I know also the situation when a mentally troubled person hurts the people around them who suffer see him suffering. But it still is (or was) his life.
If contested (as it seems to be), this should be a topic of open, public discussion. And I hope that the logic that "we will do X to you against your wishes because it is good for you" will be rejected by the majority. We do not let parents take adult kids' money "'cause we know better how it should be spent", etc. Restricting individual freedoms this way is, to me, a wrong path to take, but opponents should certainly present counter cases.
Restricting freedom when one is danger to others (e.g., carrying a deadly, contagious disease) is OK in my book.
While I have been coaching my sis, eg "If Sally doesn't want to do chemo, then we have to respect her decision.", I needed to be coached in turn. So I've been seeing a counselor who has much experience with addiction and end of life stuff. Not for my own grieving or processing (much), but I really need advice refreshers, and sanity checks, and updates on best available science to help me (us) strategize.
The basic advice comes down to 1) first take care of yourself 2) don't judge 3) don't try to fix, just support and empathize 4) there may come moments of lucidity where the "patient" does ask for help and is open to suggestions, so be patient and be ready.
I now see great parallels between addiction, denial, cults, and how people face end of life. Mostly in how we relate to those we love who are going thru those experiences. Which will be ourselves one day, so be advised.
You wrote:
"... I would go seek a good doctor by myself."
I strongly encourage everyone to have a patient advocate accompany them. Best available science (as of 10 years ago?) was that this significantly improves outcomes.
While I was still volunteering, how it typical works is
a) pre-meet with my buddy, compile list of issues and questions
b) take notes during visit with doctor, play wallflower as much as possible (it's not about you), nudge patient to keep convo on track and ensure all questions get asked
c) review notes and action steps
Your patient advocate will (should) keep you focused and accountable. People are notoriously bad at self-reporting (eg "how long have have you experienced this discomfort?", "um, I dunno"), so advocates are also observers, verifiers.
The advocate gig isn't easy. My sis and I are trying to help our mom. But she's early stage dementia, has terrible short term memory, and has a history of not asking for help (stoicism). So we don't get looped into the convos until issues become crisis. Alas, mom's not quite to the point where we can start making decisions for her, so we just have to tough it out. With an emphasis on respecting her wishes and integrity.
So I just try to follow my own advice: "Mom, what do you want, need? Maybe we can help."
PS- A former sweetie of mine was likely paranoid schizophrenic. My efforts to connect with, help her started my learning on that facet of this topic. I failed her and she remains untreated. I'm hoping that I'll do better, be more useful next time.
The article seems to agree on that though some in this thread seem to conflate this with "do X first time -> get put into asylum/hospital against your will", I don't think anyone honestly wants that.
Imho this is a very clear line.
This is not even to mention that disagreeing with the Party can become very dangerous to yourself... (Not so much in the Netherlands, but elsewhere, possibly. The soviets used forced institutionalization against their political enemies.)
Which brings up the next problem that what will be enforced is perceived risk, not actual risk. Per billion-vehicle-miles-traveled, private pilots are as safe as car drivers around 11 or so deaths, but much more common activities such as bicycle commuting is vastly more dangerous around 31, and simple walking commute is even higher around 36. Speaking of bicycle commuting, that brings up the third dimension which is political, in that aggressive public support of bicycle commuting is a hipster sacrament not to be interfered with. Speaking of politics, AOPA is not really a group to be messed with, so even if private pilot flying were more dangerous, it might not be a fight worth picking for bureaucrats. And finally the forth dimension is time; its possible, in fact nearly certain, that private pilot flying was at one time, perhaps 1925 or 1955, more dangerous than driving in 2018, however influential or profitable that might be in 2018 it would be bad justification for legal enforcement in 2018, in a sort of affirmative action sense that my grandfather was a "very dangerous private pilot" in the WWII era therefore I should be punished for his actions by making it illegal for me to fly...
It's a question of whether we rate the travelage by utility or by luxury. If we consider it for utility, vehicle-miles travelled is a perfect metric. If for enjoyment, time spent traveling is better (but still not perfect).
My observation is that conventional psychiatric treatments result in a self-fulfilling prophecy: mental patients need treatment because the treatments they receive cause brain damage that necessitates further treatment.
Looking back, I now recognize that my friend made herself psychotic when she used too much cocaine [0], but I didn't know that was the label for that type of behavior at the time.
After a few months of my involvement, she realized that she liked me more than self-medicating with the street pharmacy. But then she ran out of alcohol, was taken to the hospital, and was assaulted with medications that are NOT FDA-approved to treat substance-induced psychosis. The medications that they force upon my friend are actually known to cause stimulant users to use more stimulants.
[0] https://en.wikipedia.org/wiki/Substance-induced_psychosis#Su... - "While the vast majority of cases are acute and resolve fairly quickly upon treatment and/or abstinence, they can occasionally become chronic and persistent. Alcoholic psychosis is sometimes misdiagnosed as another mental illness such as schizophrenia."
All my friend really needed was some Naltrexone to help keep her away from alcohol while she sobered up, and other drugs (thyroid, etc) and nutrients (B-Vitamins, good proteins, etc) to help support her metabolism (after 2 years, her forced treatment provider did a genetic test and added methylfolate [Vitamin B9] to her drug cocktail, because she can't use the folic acid used in fortified flour). But the only treatment she received was haloperidol (used to torture political dissidents in the Soviet Union [1]) and other palliative psychiatric drugs.
In my struggles to extract my friend from her misdiagnosis, I have come to believe that the system is completely hostile to the concept of cause-and-effect. The professionals believe their patients have chronic conditions that they will never recover from, and that even if the original cause of the patient's presenting symptoms is known, the patient's ongoing maintenance medications are the only thing that matters.
From the article:
> Misty slowly stopped responding to medication. [...] Antipsychotic medications led to dramatic weight gain. Misty dyed her hair jet black and her eyes lost their sparkle. She eventually started to refuse outpatient treatment.
Medications are known to worsen outcomes when used over the long term. Research has found that first-episode psychosis patients have the best prognosis if they never receive "anti-psychotics". The next best prognosis are those that have antipsychotics withdrawn after a short period of time. The worst prognosis is sustained by those who are maintained on "anti-psychotics". These "medications" cause "dramatic weight gain" by attacking the body's metabolism. Refusing outpatient treatment is a completely logical response when you are being harmed by the treatment.
> With the development of effective antipsychotic medication in the 1950s and 1960s, many psychiatric hospitals in the USA and other countries, including the UK, began shutting their doors.
Early 20th century "psychiatric hospitals" utilized various forms of abuse to give their patients brain damage that resulted in the patients being made docile. Lobotomy [2], electro-shock brain damage, etc. The "anti-psychotic" drugs were originally known as tranquilizers, and were used to the same effect: docility without recovery. The transformation of these drugs into "anti-psychotics" was a triumph of marketing over science.
Resistance to psychiatric abuse is spinning its tires because the system makes so much money perpetuating itself. But I am certain that eventually the sorts of palliative treatments forced on patients to perpetuate their mental conditions will join bloodletting, calomel (mercury poisoning) and the routine extraction of tonsils in the dustbin of medical history.
[1] I just learned about Soviet use of Haldol for torture from Robert Whitaker's first book, Mad in America. My observations confirm that 'Haldol' really is a terrible drug.
[2] https://en.wikipedia.org/wiki/Lobotomy
Robert Whitaker's foundation is sort-of a clearing house for the Resistance: https://www.MadInAmerica.com/
Outpatient treatment can cause further harm, worse than what the illness will do, depending on what it is. In many cases of mental illness the underlying cause is physical, and if you shove antidepressants or antipsychotics on those people they just might get worse rather than better.