Focusing on the commonplace is a good idea if you're worried about saying the wrong thing. Remarking on the daily practicalities of Esprit's life won't make us blink, but we'd rather you didn't bring up the long haul, even with compliments like, "God only chooses special parents to have someone like Esprit," or commiserations like, "Sometimes, it all just seems so unfair."
I get it. Esprit can bring to mind big-picture questions about blind fortune or the mystery of God's plan — something seemingly terrible has been visited upon an innocent child. But those are the thoughts you shouldn't share with us. For parents of a severely disabled child, the big picture is dominated by a future cataclysm. For my wife and me, it's that, although Esprit has lived nearly 15 years, we will likely survive her. For other parents, it's that their child will likely survive them. We would rather consider the big picture at times of our own choosing.