In hospital for 34 years

Stress?

Did you have your spine (esp cervical) examined, for the possibility of Vagus nerve compression?

Sorry for the „internet diagnosis“, but I had a lot of the same symptoms in the last three months - maybe it helps: did they check your thyroid thoroughly? Best of luck to you!

Another unwanted random suggestion, but along with all the medical tests and treatments you're undergoing, you might want to try regular Meditation and Pranayama (Breathing exercises) on the side. Sometimes it has great effects, and it never harms anyone anyway.

Random Internet Guess: Heavy metal poisoning?

Moving will have very little affect on your weight loss compared to the amount of calories you are eating. Also, it’d be a high metabolism that’ll cause weight loss, not a slow/low one. Not that this helps, but it’s worth having the basics straight, on the off chance it helps in any way :)

Super random, not a doctor -- lyme disease is one test. Another is unidentified food allergy. Close friend had similar symptoms for almost a year. Thought he was dying. Turned out to be lactose intolerance :(

It's horrible, but sadly it happens. The only stupid advice i can give you is: Do not give up. Ever.

For my wife it took about 20 years to get her constant pain acknowledged. After that it took more than 10 gyneacologists to even get her diagnosed. We still needed a 2nd opinion to get a decent operation done.

For more than half her life she believed the problem was 'in her head and she should shut up about it'.

Her pain treshold is so high that i feel like a total wimp whenever i complain about pain.

> panic attacks to more serious things

Anxiety disorders are in the top ten when we look at years lost to disability.

Many people (70%) who report attempting suicide have an anxiety disorder.

Psychiatric illnesses are severe illnesses.

If you have low levels of insulin you might have trouble getting that glucose where it needs to go. If there’s nothing wrong with the production of insulin as such it might be over suppressed. There’s a hormone responsible for suppressing insuline connected to the stomach, forgot what its called, but it’s known that gastric bypass patients can have trouble with this. There is thing called “dumping” which they experience, similar to an anxiety attack, connected to this. Might be an area to look into.

Oh hey, I got almost the same issues here, except for being in bed and constantly dizzy.

random dizziness - check

borderline fainting - check

lots of gas - check

ringing in the ears - check

"attacks" - check, including racing heart, death anxiety

No results in any medical checks as well but for what it's worth I have a lot of the triggers figured out and can mostly avoid them but sometimes it all hits out of the blue and can tie me down to whereever I am for up to 2,5 hours.

What helps me the most is to actually accept these symptoms and work through them when they occur. I have learned over the years that none of those are actually dangerous although it still is hard to use this knowledge when an attack hits.

For me the most common triggers are sleep deprivation, alcohol, cigarettes, fat food and stress but, as I said, I can be on my best for a whole week, sleeping well, eating properly, not drinking or smoking and still get the symptoms randomly out of the blue while working or just walking around town.

Anyhow, it was interesting to read about someone with a seemingly similar condition and all the best for your future!

POTS?

Dizziness. Is that 'room spinning' or 'funny feeling in the head'?

Lot's of "I am not a doctor" suggestions. I do the same thing myself. My wife (surgeon), often points out that my diagnoses are missing basic things. Even though I studied with her and read all the flash cards.

Just because a doctor hasn't solved your problem yet, doesn't mean you should give up. You don't want to take advice, and self diagnose with web advice.

Now pretend I didn't say all that, and check out BPPV. If it is BPPV, then you can have someone do the Epley maneuver on you and you'll be fine. Dizziness is incredibly stressful, and the rest of your symptoms can be associated with stress. The fact that it comes in waves makes me think that it could be the crystals in your ears moving around.

But seriously. Don't take medical advice from someone who isn't a doctor.

Hi. Please look into toxic mold exposure.

It's a neurotoxin, it's virtually invisible, and has little mainstream awareness.

I had a pretty serious bout with this over the past 2 years, and was similarly frustrated with the vagueness of the symptoms (and correspondingly useless diagnoses from doctors.)

The symptoms are broad, systemic, varied, and hard to pin down, and most doctors aren't familiar with it, much less able to treat. My symptoms didn't exactly match up entirely to yours, but enough overlap to make me raise my eyebrows.

Several of my friends who (same as me) spent time in China had the same. (It's a high-mold environment.)

Please tweet/DM me @fieldse if this turns out to be helpful.

Consider celiac, it covers basically everything you've described.

I had a friend who lived next to me with similar conditions, he was about 15 years old. He had a lot of weakness, stomach problems. Bloating in his stomach would cause headache. He would have bad itching in his body and his head (probably from the dryness), his hair were falling, and whenever he tried to stand up for a moment he said his vision and hearing would go away and he would see stars in front of him. Then they would come back. And his stomach problems would cause him headaches. The doctor in the government hospital here in India (who provide free treatment) did some blood tests and gave him some antibiotics. When it didn't work he just scolded his parents and told them to go away and just feed him well. Free health care can be like this in my country - there are just too many patients.

His parents could not afford private healthcare. So they decided to go to a local homeopathic doctor who used to charge half a dollar for a visit (compared to ten dollars for private doctors at that time which they couldn't afford).

Amazingly, it worked. It made him feel like going to sleep and the next day he was feeling maybe 50% better. Then he gradually became normal.

But placebo can be powerful. I have seen so many people cured by homeopathy - most of the times from problems that would need antibiotics or pain killers to cure, but sometimes other things too. Homeopathy is very popular in my country and there's a doctor or chemist selling homeopathy on every street.

Now I am not saying that it would work in your case, specially if you consider it to be a placebo and then that you already know it's a placebo. But it might be worth trying out.

You can do some research on the internet for the best homeopathic medicine for your symptoms. I just searched a bit for these symptoms and came across something called carbo veg. Maybe you can read about it and others, find one that you (and hopefully your subconscious mind) are convinced matches your symptoms and then take it. Order it in 30c, not even a single atom of the original substance is left at that point so what you chemically would have would be a drop of pure alcohol in water (hence it would not have any side effect). Ofcourse a homeopath would say that the water has magical properties , but all that doesn't have to matter. All you have to lose is maybe a few minutes of research to pick something that convinces your subconscious mind, and a couple of dollars for the medicine.

Just a suggestion.

It seems like a needle piercing the skin between two ribs to a distance of at least 2-3 cm could become lodged in tissue inside and be pulled in completely when the rib cage expands on the next breath. Once the needle is inside the body, anything goes. The heart is only approximately 3-4 cm from the skin. The heart's beating could grab the needle and pull it even farther in.

A web search brings up several instances. This one [1] at least seems to somewhat confirm my intuition.

[1]: https://timesofindia.indiatimes.com/india/Docs-use-magnet-to...

> for which their isn't yet technology to discover

Without a doubt there will be a ton of DNA based issues. Right now we know just a tiny number of them, and usually only when the issue is a single change.

At some point we'll have the computing power to detect issues caused by two mutations at once, then 3, and so on.

We would need massive quantities of data: Full genome analysis, and a full medical description in a computer readable format.

So expect a DNA drive at some point in your future: Hopefully anonymized, and even more hopefully optional. (Anonymized is pretty likely - but optional, well, that one we'll see - I suspect at some point you will be required to submit data in order to receive health insurance, so technically optional, but not practically.)

2: Chemically induced issues. (What chemical specifically I obviously can not say.) I suspect we more or less know all the single-chemical issues. But issues caused by chemicals that act synergistically are much less likely to be known.

3: Various parasites and other types of mutualism (Commensalism, Amensalism).

No, it's coincidence.

Irony would be when you expect her name to be Ms. Soggy-Noodles, but it turns out to be Ms. Steele.

But, yeah, steel is rather iron-y, so I'll give you that.

Crohns? It can in rare cases affect the nose/throat and fits with the fatigue. However I assume the gastro would have noticed it.

No allergies?

Have you had your house tested for allergens, stuff like black mold etc? And/or leaking gases like carbon monoxide, natural gas, etc?

Have you been tested for allergies?