I happen to know Irenie personally. One of the things that she's done to help others in the wake of her illness is to get together with other patients and medical practitioners at Moorfields Eye Hospital to write a pamphlet with information about Acanthamoeba Keratitis. It has information about the condition in easy to understand language.

Here it is:

http://www.moorfields.nhs.uk/sites/default/files/acanthamoeb...