I wouldn't underestimate the expertise of regular people living with a disease. Parents of sick kids, especially.
I wouldn't underestimate the expertise of regular people living with a disease. Parents of sick kids, especially.
The point here is that people frame medical problems on top of their own experience. And everyone's experience is different. You can have the same symptoms for countless different diseases.
My thinking is that the only people who can see this objectively are medical professionals who have different folks coming into their office every day. Everyone else is biased by their own experience. Does this make sense?
Some doctors are fantastic. A lot are not - and a non-fantastic doctor plus a well-educated patient is a sure recipe for disaster, take it from me. Add an uncommon disease into the mix (and as our nephrologist says, there are categories of disease, like kidney disease, where every case is a new book) and the inescapable conclusion is that if you've got a chronic illness you are on your own. If you're lucky you'll find doctors that can give you good advice. But it's not likely to be the first guy down the road, either.
Your larger point, that Yahoo Answers is filled with garbage, is very accurate. Most forums on any topic are filled with garbage, but health garbage has centuries of history and its promulgators are untiring. You learn to filter that crap out.
What would be better - way better - is some combination of crowd sourcing and solid lay-medical journalism, investigating some of the extraordinary claims in search of extraordinary evidence (or usually lack thereof).
http://www.experienceproject.com/groups.php?c=health-wellnes...
There is some interesting talks from one of the founders on Stanford's EC Corner:
http://ecorner.stanford.edu/authorMaterialInfo.html?author=2...