Reading your post, it seems that you've given everything in traditional medicine a serious shot, and it failed to help. I honestly don't know what would help, but since you're asking hackers, I suggest the following "hacks".

1. Take time off from work, if you can. Try two or three months. During those months:

2. Exercise. Make your body work. Start with low-impact stuff: biking, rowing, push-ups, pull-ups. Find a trainer who can help you get into circuit training. Train with weights. It's amazing how much better the human body works when it has the strength to support itself.

3. Change your diet. Considering the extremity of your digestive problems, you probably need an extreme change. Try raw food veganism. I've anecdotally heard of it working miracles on people with digestive trouble, and it certainly seems like the healthiest diet imaginable. You'll have to work pretty hard to receive correct nutrients in good amounts. Read http://www.nytimes.com/2010/05/13/sports/13runner.html for inspiration. You may need to find a nutritionist to help out, but in the meanwhile, try reading this blog: http://www.choosingraw.com/