Recently I had an fMRI done as part of a research program at North Western and had to sign a bunch of paperwork where it was said that my data would be secured with a best effort.
Well, fast forward to last night where I was curious if their psych department had any webservers exposed to the internet, which it shouldn't. I found sip servers, printers with admin rights, routers, personal computers, etc etc etc. HIPAA hell. And that was only on three subnets and only 80/443.
I sent their heads of technology an email to see if they could look into it, since I'd prefer that my data not be stolen by anyone who knows how to run wget. They closed the ticket with this:
bpchaps, I believe you do have good intentions. That being said, we are already performing regular scans of our systems. If you do stumble upon anything significant, please do contact us again.
:(